Improving information about disabled people

The Disability Data and Evidence Working Group, jointly facilitated by Statistics New Zealand and the Office for Disability Issues, has been established to improve data collection and information on disabled people in New Zealand.

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Disability Survey - update

Consultation on Disability Data & Evidence ‘Enduring Questions’

Establishment

Membership

Meetings

Stocktake

Contact

Information on disabled New Zealanders

Disability Survey - update

At a consultation workshop on the proposed enduring questions in Wellington on 17 August 2016, it was agreed that Statisitics NZ and the Office for Disability Issues would provide an update on what happened with the Disability Survey and what happens next.

Read more on the Disability Survey

Consultation on Disability Data & Evidence ‘Enduring Questions’

Making the right decisions on things that are important to disabled people requires good quality data and evidence. However there are gaps in what is currently available in New Zealand. To help address this challenge, a disability data and evidence plan is being developed by the Disability Data and Evidence Working Group.

This plan identifies what information is needed to make the right decisions over the long-term, and what needs to be done to address any gaps. An important step in making this plan is developing ‘Enduring Questions’. These are questions that identify the areas where information is needed. They are referred to as ‘enduring’ because they focus on long-term needs, rather than just what’s important right now.

The Disability Data and Evidence Working Group has developed a draft set of Enduring Questions and it is now seeking feedback on these questions. You can access the Enduring Questions document below. You can send us your feedback until 9 September 2016.

Note: This consultation has now closed.

Establishment

On 16 June 2015, the Minister for Disability Issues announced the establishment of the Disability Data and Evidence Working Group, jointly facilitated by Statistics New Zealand and the Office for Disability Issues.

The need to improve data collection and statistics on disabled people is a key recommendation made by the United Nations Committee on the Rights of Persons with Disabilities and the Independent Monitoring Mechanism (comprised of the Office of the Ombudsman, the Human Rights Commission and the Convention Coalition Monitoring Group). A strong evidence base is needed to inform decision making by government agencies, as well as understanding the life outcomes of disabled people over time.

This group has been called the Disability Data and Evidence Working Group because we know that while data and statistics are very important, there are other forms of evidence that need to inform our decision-making. The Working Group will have a major focus on the kind of data and evidence required to ensure the development of sound policy and appropriate services to meet the needs of disabled people in New Zealand and, thereby, improve their everyday lives.

Read the Terms of Reference for the Disability Data and Evidence Working Group

Read the Minister for Disability Issues' announcement of the Disability Data and Evidence Working Group

Membership

The selection of representatives for the Working Group was based on ensuring that participants have the rights skills and experience to address the often complex challenges of collecting and analysing data and evidence on disabled people. The membership includes representatives from government agencies, Disabled People’s Organisations (DPOs), disability sector non-government organisations and universities. The members have been appointed for one year in the first instance. They include:

  • Diane Ramsay, Manager, Labour Market and Households Unit, Statistics New Zealand (co-facilitator)
  • Megan McCoy, Director, Office for Disability Issues (co-facilitator)

Other participants include:

  • Litia Tapu, Manager, Wellbeing and Housing Statistics, Statistics New Zealand
  • Phillipa O’Brien, Statistical Analyst, Statistics New Zealand
  • Dr Catherine Brennan, Advisor, Office for Disability Issues
  • Christopher Carroll, Senior Policy Analyst, Disability Policy Team, Ministry of Health
  • Clare Shepherd, Regional Practice and Implementation Manager, Special Education, Christchurch, Ministry of Education
  • Anne Hawker, Principal Disability Advisor, Work and Income
  • Patrick Power, Principal Advisor, Information Management, Ministry of Justice
  • Julie Shipton-Pasgaard, National Manager for Serious Injury Service, Accident Compensation Corporation
  • Samuel Murray, National Policy Coordinator, CCS Disability Action (representative of New Zealand Disability Support Network)
  • Dr Brigit Mirfin-Veitch, Senior Lecturer, Centre for Postgraduate Nursing, University of Otago/Director, Donald Beasley Institute (university representative)
  • Dr Jonathan Godfrey, Senior Lecturer in Statistics, Massey University, Palmerston North (DPOs’ representative)

Meetings

Working Group meetings are held on a regular basis. Meeting papers and summaries of the meetings are available in this section.

28 August 2015

Download - agenda [DOCX, 118 KB]

Download paper 1 - Measuring disability in New Zealand - current status and issues [DOCX, 424 KB]

Download paper 2 - Context for better information on disabled people in New Zealand [DOCX, 162 KB]

Download - summary of meeting discussion [DOCX, 147 KB]

1 October 2015

Download - agenda [DOC, 58 KB]

Download - summary of meeting discussion

9 December 2015

Download - agenda [DOCX, 121 KB]

Download - paper 2: Monitoring framework [DOCX, 147 KB]

Download - summary of meeting discussion [DOCX, 150 KB]

4 March 2016

Download – agenda [DOCX, 17 KB]

Download – paper 1: A process for establishing enduring questions in the disability domain [DOCX, 348 KB]

Download – paper 2: Enduring questions in the disability domain [DOCX, 287 KB]

Download – summary of meeting discussion [access denied]

Stocktake

Download – a stocktake of government data on disabled people [DOCX, 384 KB]

Contact

If you have questions or comments to make about the Working Group, please email Evidence_Working_Group@msd.govt.nz.

Information on disabled New Zealanders

Information on disabled people in New Zealand has, so far, been collected primarily via Statistics New Zealand’s Disability Survey. In addition, Statistics New Zealand is currently working to include questions in the Household Labour Force Survey and the General Social Survey.

Limited data is available in other sources such as administrative records and narrative accounts of disabled people’s lived experience of disability.

There will be on-going engagement with the disability sector by the Working Group to identify key information gaps, priorities and ways of meeting needs to make a positive difference in the everyday lives of disabled New Zealanders.

Read more on the Disability Surveys

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