Administrative data

Disability data may come from programmes specifically interacting with disabled people or broader services that disabled people also utilise.

Examples of reports

Below are some examples of publications using administrative data. It is not an exhaustive list but rather a reflection of disability data in general:

• Ministry of Health - DSS Demographics report
  This publication presents aggregated demographic information about the people with disabilities who have been allocated Ministry of Health funded disability supports during a 12-month period to September 2018. The report presents demographics relating to specific service types including home and community support, carer support, supported living, respite, behaviour support, choices in community living, individualised funding, enhanced individualised funding, funded family care, community residential, younger people in aged residential care, day services and high and complex framework. The report also presents the demographic information by specific disability types including physical, intellectual, autism spectrum disorder, neurological and sensory disabilities, and includes some comparisons with the Ministry’s disability demographic report published in 2016.
  
  

• Ministry of Social Development – Benefit Fact Sheets Snapshot – December 2021 Quarter (PDF)
  The Benefit Fact Sheets provide a high-level view of trends in benefit receipt. The Benefit Fact Sheets are published quarterly and contain information on income support provided by the Ministry.
  
  

• Oranga Tamariki - Children and Young People with impairments
  Insights into the differences in wellbeing and service contact between children and young people who have indicators of disability and those without.
  
  

• Mental Health and Wellbeing Commission - Access and Choice Programme: Report on the First two years (PDF)
  This report provides an update on how the implementation of ‘Expanding Access and Choice of Primary Mental Health and Addiction Support’ (the Access and Choice programme) is going – it covers the first two years of the five-year programme, up to 30 June 2021. The report answers the question of how the Access and Choice programme is performing compared with what the programme intended to deliver by 30 June 2021, including whether it has increased people’s access to, and choice of, primary mental health and addiction services.
  
  

• Social Wellbeing Agency – Understanding Use at a Local Level – Area level attendance at B4 School Checks (PDF)
  This report uses local area level analyses to understand how the local experience may differ from nationally reported figures for B4 School Checks.
  
  

• Social Wellbeing Agency – COVID-19 Vaccination Uptake report
  Uptake of COVID-19 vaccine by disabled people using the Integrated Data Infrastructure to support Ministry of Health vaccine rollout. Developed a disability indicator for use within the IDI.
  
  
• Education Counts – Ongoing Resourcing Scheme
  This index page provides links to data on the number of students involved with the Ongoing Resourcing Scheme (ORS) as at 1 July. ORS provides support for a very small number of students, with the highest level of need for special education, to help them join in and learn alongside other children at school.

Guidance

Administrative data on disability is scarce. There has been ongoing encouragement from the sector for programmes and services to collect data related to disability which in turn contributes to the availability of disability data. If you are interested in how you can begin or better collect data, here are some useful guides:

• Statistics NZ - Improving New Zealand Disability Data (PDF)
  Improving New Zealand disability data outlines Statistics NZ's plans to publish new data about disabled people. The paper provides information about the way in which the new data has been produced and why it is needed. Understanding this will help to ensure that the data is interpreted correctly and used effectively.
  
  
• Washington Group - publications about Washington Group tools (free access)
  A list of published journal articles, books (including book chapters and proceedings) and reports that focus on the tools developed by the Washington Group. 
  
  
• Washington Group: Disaggregation and Sustainable Development Goals
  Information describing the Washington Group's approach to disability measurement and analysis of disability measurement and analysis of disability by outcome measure in releation to the Sustainable Development Goals.
  
  
• Washington Group: The Social Model of Disability
  Guidance on the social versus medical model can be found in this blog.
  
  

• Public Service Commission – Standards of Workforce Information for Agencies in the State Services (Disability information) PDF
  This guidance supports State service agencies with collecting and reporting disability status information about their staff. The guidance also supports managers to have conversations with their staff regarding reasonable accommodations that may be needed and how greater inclusion can be affected.
  
  
• Social Wellbeing Agency – Using Integrated Data to understand mental health and addiction conditions (PDF)
  A tool for consolidating IDI data about mental health and addiction conditions to support analysis using consistent metrics drawn from data currently available. Includes classifications about disability
  
  
• Te Pou – Data and Information Use: the basics
  A series of four booklets designed for novice users of data and information to train people new to the collection and use of data and information. The aim is to embed a basic knowledge, then hone an understanding of how and why data, and the information it provides, is of use in everyday practice and at an organisational level. The four booklets allow learning to be ‘chunked’ into manageable pieces.
  • Te Pou – Data and information use: ethnicity
  • Te Pou – Collecting Data and Using Information Well
  • Te Pou – Making a difference with data
    
    
• World Health Organisation – Strengthening the collection of data on disability
  Collation of information about disability data and collection with examples of a model disability survey.
  
  
• UNICEF - Three Methods for Collecting Data on Persons with Disabilities
  Youtube video outlined three methods for collecting data on disabled people. The videos include PowerPoint presentations with links to these in the video description box.

How to implement administrative data

In the example of reports section above, there is an example from the Ministry of Health around the approach they have used to identify administrative data.

 There are two parts to collecting administrative data:

• Identifying the support
• Identifying if the person is a disabled person.

The Ministry of Health worked with members of the Disabled People’s Organisations (DPOs) to identify what in the health setting were things that could be required to support a person access health services.

Step one: It is suggested that agencies use this template as a basis of developing a draft that identifies:

• Situations when it is appropriate to collect the data.
• What from the list does your agency believe is support that is required to access your agency’s services?

Step two: This information can then be used as a basis for discussion with the DPOs.

Step three: Final sign off including by the DPOs.

This approach is suggested because of the excellent groundwork undertaken by the Ministry of Health and been cognisance of making the most effective use of the DPOs expertise.