Getting it going - who is involved

Getting it going - who is involved

Glossary

Appendix 1 - The Reference Group

Getting it going - who is involved

Achieving the vision and outcomes of the Strategy will take all New Zealanders working together. With rights there also come responsibilities, for everyone. There are also some key groups who have particular responsibilities under the Strategy.

They are:

• Disabled people, families, whānau, allies and the disability community and sector – providing input through governance, independent perspectives and public consultation.
• Cabinet – responsible for considering regular reports and making decisions on implementation of the Strategy through the Disability Action Plan.
• Ministerial Committee on Disability Issues – supports co-ordination of implementation across government.
• Independent Monitoring Mechanism – responsible for providing an independent perspective on implementation of the Strategy.
• Chief Executives’ Group on Disability Issues (and Senior Officials Group) and Disabled People’s Organisations – responsible for governance and coordination of the Disability Action Plans.
• Government agencies – responsible for implementing the Strategy according to the priorities agreed in the Disability Action Plan.
• All New Zealanders – breaking down the barriers of a disabling society and supporting implementation of the Strategy.
• Local Territorial Authorities (City, District and Regional Councils) – consider their responsibility for disabled people in the space they oversee, in line with the Strategy and the Convention.
• Private sector, businesses and Non-Governmental Organisations – ensure their business as usual is inclusive and responsive to disabled people on an equal basis with others.

Glossary

• Barrier is something that makes it difficult or impossible for people to do something
• Demography is statistics about people, such as age and ethnicity
• Disability is something that happens when people with impairments face barriers in society that limit their movements, senses or activities
• Disabled people are people who have long-term physical, mental, intellectual or sensory impairments which in interaction with various barriers may hinder their full and effective participation in society on an equal basis with others. This is the understanding of disability in the Convention
• Enabling is to provide with the ability or means to do something
• Equality means that everyone gets the same opportunities
• Equity is recognising that sometimes people need different things in order to be equal
• Impairment is a problem with the functioning of, or the structure of someone’s body
• Investing is about spending time, energy or money on something
• Mainstream means things including activities, services, supports, attitudes or ideas, that are open to everyone to use or participate in (for more detail of the disability context, see page 21)
• Non-disabling is about removing the barriers in society that disable people with impairments
• Pedagogy is the theory of teaching
• Proxy means something similar
• Reasonable Accommodation is making necessary and appropriate modifications and adjustments not imposing a disproportionate or undue burden, where needed in a particular case, to ensure to persons with disabilities the enjoyment or exercise on an equal basis with others of all human rights and fundamental freedoms
• Twin-track approach is making sure that mainstream activities and opportunities are inclusive of, and accessible to, all people and that specific activities and opportunities that are required by some people are also made available to those people (for more detail of the disability context, see page 21)
• Universal design is good design that works for everyone (for more detail of the disability context, see page 21)

Appendix 1 – The Reference Group

Members of the New Zealand Disability Strategy Reference Group (for further details on each member of the group please refer to the Office for Disability Issues website): www.odi.govt.nz

• Colleen Brown MNZM, from Auckland, brings a families perspective.
• Robbie Francis, from Hamilton, brings the perspective of young people and lived experience of disability.
• Lance Girling-Butcher QSM, from New Plymouth is a nominated Disabled People’s Organisations (DPOs) representative. Lance became blind as an adult.
• Peggy Koopman-Boyden CNZM, from Hamilton brings an older person’s perspective from research and personal experience.
• Clive Lansink, from Auckland, is a nominated DPOs representative. Clive is blind and is a strong advocate for disabled people speaking for themselves.
• Victoria Manning (Co-Chair) MNZM, from Wellington is also the Chair of the NZSL Board. Victoria is Deaf and also brings 20 years’ experience in disability policy.
• David Matthews, from Christchurch and Wellington, brings a service provider’s perspective.
• Papaalii Seiuli Johnny Siaosi, from Auckland, brings a perspective from mental health and addictions consumers, their families and Pasefika communities.
• Dr Martin Sullivan QSO, from Palmerston North, brings his perspective as a disabled person.
• Hamish Taverner, from Palmerston North, speaks up for the rights of people with learning disabilities. He brings the perspective of lived experience of this disability.
• Jonny Wilkinson, from Whangarei, brings the perspective of a person with lived experience of disability.
• Gary Williams MNZM, from Christchurch, is a self-employed disability consultant bringing over 40 years of expertise in the disability sector. Gary also brings a perspective of a Māori disabled person.
• Government agencies had two representatives on the group. During the development of the Strategy, these representatives were Brian Coffey (Ministry of Education), Kathy Brightwell (Ministry of Health) and Sacha O’Dea (Ministry of Social Development).
• Paul Brown from the Office of the Ombudsman was an observer.
• Megan McCoy, Director of the Office for Disability Issues, Co-Chaired the reference group meetings.